gingin's blog: Journey Thurs. Sept. 13

<p>Oh my goodness...what a week !!! First I've been on the computer...been too tired and this beast is most HATEFUL. Don't know what I've done, but it took me 6 tries today to get on the net...keep getting "the blue screen of death".</p>
<p>Friday, Sept. 7...called Bill in the morning. Said they had stopped the drip for his BP and it was holding steady. Asked me to bring him a burger and fries. Richard was here to dog sit...as I was leaving hospice called to see when I would be at the hosp. as they wanted to talk with both of us and sign Bill up. Got to the hosp. and hospice arrived shortly after. The doc. said Bill could go home if he wanted. I lost it...had to leave the room and pull myself together. HELLO...he still had an IV running fluids, the cath and had not been up and moving around yet. Scared the crap out of me. Well naturally he wanted out and home. Since we live in a different county, hospice could not sign him there. Went to fill 7 RXs and home we went. The hosp. notified hospice that we were headed home. That evening the "big mucky muck" came out to do paperwork. She even brought Bill two meds...one for pain and one for anxiety. Asked what he needed/wanted.</p>
<p>Saturday, Sept. 8...The weekend on call nurse came to change the dressing on Bill's central line and get vitals. While she was here the medical supply co. brought a hosp. bed, shower chair and oxygen...both the big thing that plugs in (we call it R2D2) and a portable tank in case the power goes out. Bill wanted to bathe and I was so happy the nurse was here because before he was done I had to sign paperwork and be shown how to use the O2. He still sleeps in the bedroom at night, but hangs in the hosp. bed during the day...only dog to jump up with him so far has been Dixie. Rotten brat LOL After everyone had gone and Bill was settled I ran to the store quick...was very much ready for a cold one. Oh BTW...hosp. bed is in the living room.</p>
<p>Sunday, Sept. 9...weekend nurse came again. Bless her heart, she brought the dogs her left over lunch in case they could have it...enjoyed it with their dry food for 2 days. LOL Can't remember when the hospice social worker was here...either Sun. or Mon. In any case, another busy day with one thing and another and I was whipped. I *think* friends stopped by to see how I was as they didn't know Bill was home yet. I really don't know if I'm comming, going,been there or done that.</p>
<p>Monday Sept. 10...Another busy day. Fed Ex brought meds and we got to meet Bill's primary care nurse, Sue. She is FANTASTIC. Bill still wants a second opinion so I asked what that meant with regards to hospice. A second opinion is OK and he will remain with hospice, but if he chooses to be aggresive then he is off hospice. However, he can sing up again when the time comes. Right now we are waiting to hear if he is approved for medicade. After Sue left I went to fix dinner and heard what sounded like a shotgun. OMG...what was that ?? Well Bill was raising the head on the bed so he could eat and the BED BROKE !!! Called hospice who called medical supply who called me. Said no need to come that night...next day would be fine. LOL what next</p>
<p>Tuesday, Sept. 11...medical supply brought a new bed and Bill just had to put it in a different place so he could see the TV better...they are not allowed to move furniture, so Bill and I pulled his big leather chair out to the middle of the room. Took alot out of him. After they left, I made the bed and proceeded to move furniture around by myself...not easy, but at least now Bill can easily watch TV. Fed Ex brought more meds. Bill is very tired as am I.</p>
<p>Wednesday, Sept. 12...Richard came to dog and Bill sit as I had to go to town to get the rest of an RX that was only partially filled and to have my pre-op blood work done. Few more stops and I was headed back home. Bill wanted breakfast for dinner, so that's what we had...he ACTUALLY ate...YEA</p>
<p>Thursday, Sept.13...Sue came to change the dressing on the central line and flush it. Sent her off with a big plumie in a 10gal. pot..she was a very happy camper. Richard came and cut the dog run for us. Not a good day for Bill so far...his head and left arm are hurting him. Sue is going to talk to the doc about time release pain meds...same as the liquid he's on now, but should last longer. And he still has the liquid in case of a breakthrough of pain. Should get meds again tomorrow from Fed Ex. Bill is looking so tired and thin...he's in the bedroom napping as I type. If anyone wants to send a card, I'm sure he would appreciate it.</p>
<p>Ginger and Bill Holmes...P.O. Box 191...Fountain, Florida...32438</p>
<p>And so the journey continues. For all the prayers,well wishes,good vibes and love We are most grateful and thank you.</p>

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