Ed, very sorry to hear about Gena's on going problems. Is Shands in Gainesville or the Mayo in Jax a possibility. Thoughts are with you and your wife.

Have known many patients who diagnosed their own issues before the physician knew what to do. I have always liked BCBS, but that doesn't mean they aren't playing the same games as other health care insurances, and replacing our tried and true physicians with hungry new Dr's on the cheap. By the way, tell that Dr off, he needs to open his eyes and take a class in empathy. It may be telling you Gena has worse problems to face than the ones she is enduring, but I hope not. Like RJr - are 2nd opinions allowed on primaries? Is she on a source of oxygen? Pain has a purpose.

Thank you are for the well wishes and prayers. We are looking at several things now. We literally are so worn down by the frustration of dealing with deaf doctors and insurance companies...long distance travel would be rough, I'm afraid. We're hoping the rheumatologist will be able to diagnose what is going on and if it's something out of his area of expertise can direct us to someone who deals with this. She's listening to praise and worship music right now while preparing to go to the jail ministry tomorrow. She is amazing.

Ed, i know you don't want long disstace travel. But Moffit in Tampa is a great hospital.

Please express to Gena that she is in our thoughts. I'm horrified by the "treatment" she is receiving from the oncologist and the blow off regarding her pain too.

She is lucky to have you stand with her to advocate for her, with her.

It's a blessing you have some potential diagnoses and know what to look for in the test results, to monitor for changes.

Godspeed to you both.

Kneemail, an more kneemail......please God hear my humble plea. Please touch Miss Gena.....heal her body Lord. Thank you fer all your blessings. Thank you Lord. Stay strong Ed......we're here fer ya.

Ed, I just came across this thread, and my heart goes out to you and to Gina. Prayers for relief from her pain and mobility issues and for finding more responsive doctors!!

Still praying

Sam here! Continuing to pray 🙏 for God to put his healing hands on Gena! And also to give you Ed more strength as you continue to take care of her.

Ya'll, I don't want to sound like a pity-party, but please continue to pray for Gena. We go up today to an oral surgeon...she had a molar to break off at the gumline about a month ago and the root has to be extracted surgically. Thankfully she hasn't had any pain from this. Her hand, arm, and shoulder are still giving her pain. We've been to a rheumatologist, neurologist (for nerve tests) and an orthopedic surgeon. The rheumatologist thinks she has some undetectable type of RA, which is likely as her mother had it. The tests came back from the nerve test as "moderate carpal tunnel syndrome". The surgeon recommends surgery which is scheduled for April 24th. My confusion is *why* did her thumb start hurting even in the recovery room after her surgery with complaints from her about it even after she got to the room...and, even with no complaints of pain from her incisions and having a third of her lungs removed? The pain was coming through the high-powered meds they were giving her for the surgery pain. We told nurses, doctors, etc., but it was just passed over as not being important. Now I'm reading about something called "compartment syndrome" and this sounds exactly like what she experienced. It sounds like it is very much similar to CTS but is caused by a bad IV. I'm not sure if the surgery would be the same for both or different. It seems like we're constantly swimming against a strong current.

One more big prayer request. This past week my oldest sister was diagnosed with pancreatic cancer that has spread to nearby lymph nodes. We're waiting on PET scan results to know more about the cancer. Please keep her in your prayers, as well. Her name is Mary Lucy. Her husband, Charles, has been battling leukemia for several years now.

I know God is in control of all things and that He is with us through all things. But, sometimes the humanity in us makes it tough to keep going. That's when we have to give the burdens to Him.

Thank you all for your thoughts and prayers. Sorry to bring our troubles to ya'll, and me not being around anymore. This is the first spring I haven't broken ground to plant. My gardening buddy has some tomato seedlings he keeps trying to push on me. I might grab a couple and put in some of my old pots...I might eve get a sandwich or two from them!

May God bless your entire family. You've certainly faced far too many health issues. I'll continue to pray.

🙏🙏 sending a lot of prayers to you, Gena, your sister Mary Lucy and her husband Charles. I know it seems a lot but hope you continue to keep your faith strong. 🙏🙏

May God put his healing hands on your love ones. 🙏

Prayers!!

Praying!!

Ed, I hope the tide takes a better turn for your family soon, that's a lot to be dealing with.

I'm so sorry, Ed. I've added your sister to my prayers